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“They Said He’d Look ‘Normal.’ But Something Wasn’t Right.”

“They Said He’d Look ‘Normal.’ But Something Wasn’t Right.”

Like my other dual boys, I skilled morning sickness during the first few months of Damian’s pregnancy. We were thrilled and didn’t think whatever would go wrong. We learned we were having boy #3 during a routine ultrasound. I wasn’t amazed, but I had hoped for a girl. The anatomy image at a high-risk workplace shadowed. I thought it was simply due to a preceding issue connecting my son, Jonathan.

Husband and wife stand outside arm in arm smiling

Andrea Fierro

“They saw roughly wrong with the brain, right?” the ultrasonography tech asked informally during the appointment. I went cold. That was not what I had remained told. Following the scan, we were shown to a minor, private room where a sympathetic doctor explained that Damian needed to be carefully watched because his brain ventricles were teeming with fluid. Since I didn’t think it was thoughtful, I felt at comfort.

Mother lays on operating table after c-section holding newborn wrapped in hospital blanket

Andrea Fierro

However, when I was by myself for the following scan, I saw that nothing had better. My disorder has gotten worse, according to the doctor. I started desperate. “Your slight boy needs you strong he’s still faultless,” he said as he sat next to me and put his hand on my shoulder. After I moved my care to a larger infirmary, they ordered an MRI and kept a close eye on his ventricles.

Close up of intubated newborn with Factor V Leiden asleep

Andrea Fierro

The MRI was noisy and painful. The doctor called a few days later. She said, “Your baby had a stroke.” After droopy up, I sobbed in Michael’s arms. It was unbelievable to me. I took a break from work because I was so inconsolable. In addition to being larger, Damian’s ventricles were occupying the empty spaces left by damaged mind tissue.

Newborn with Factor V Leiden lays in NICU swaddled in hospital blanket with bandages wrapped around his head

Andrea Fierro

I had several tests and hospital stays as my pregnancy advanced. Most of them Damian failed. At 36 weeks, we made the decision to deliver by caesarean section. Despite my fear, I tried to maintain my hopefulness. I found peace when I heard his loud cry at birth. He had the ideal arrival.

Little boy with cerebral palsy lays in hospital bed after brain surgery

Andrea Fierro

Damian was soon originate to have issue V Leiden, a blood setting complaint. According to his doctors, it was the cause of the early pregnancy hits. He survived, but most cases like his end in failure.

Little boy with cerebral palsy lays on back smiling on blue and black check blanket

Andrea Fierro

Damian currently faces several medical tests in addition to severe cerebral palsy. He is unable to sit, walk, or speak. He has epilepsy, is tube-nourished, and is visually reduced. He started having daily appropriations when he was five months old. To help stop them, he experienced a major brain surgery in 2018 called a hemispherectomy. It was successful.

Husband and wife stand on dirt path with their two boys while mother holds son with cerebral palsy

Andrea Fierro

Damian continues to fight through it all. And I am incredibly proud of my young son.